Our week in pictures

The DAILY GRIND--see why I feel like a part-time nurse?

"Whatcha lookin at Mum?"

I received an email Wednesday morning from Heather May (above) a reporter from the Salt Lake Tribune who'd come across LuLu's blog and wanted to know if she could do a story on her. By afternoon she was on my couch with me where we talked for hours about London and the journey we've been on this last year. She came back Thursday morning with a photographer and continued her interview this time LuLu, Dad and Jones involved. She also joined us for clinic this week where she was able to interview Dr. Book and understand London's disease better.

She will follow us through transplant, even joining us in the waiting room during surgery as her photographer will gain access to the operating room for a period of time as well. I am SO happy that our suffering may benefit others, my hopes are that more people will become donors and less people will die waiting for organs and that parents will consider and decide about donation regarding their own children, God forbid they ever have to actually make that decision. Lulu continues to be a little hero.....

....with MAJOR bedhead...

...as a result of a LOT of sleeping....

...anywhere and everywhere...which is being attributed to her end stage liver disease and probably because she knows beauty sleep is a real thing.

Pulling tissues out of the box NEVER gets old, it's the simple things in life that mean the most to us right now.