Wednesday, January 4, 2012

Some where over the rainbow...LuLu turned 3!

my little dorothy...she knows better than most 3 year olds that there really is                                
 "no place like home"







Another fun birthday celebrated with the many friends and family who are dearest to our hearts. Here is to a wonderful year ahead London!

They say it's your birthday!



Earrings, take 2. (last round closed up) She was a champ, didn't cry- didn't even want to sit on my lap...I guess that's what happens when you have a medical baby. Needles don't scare this girl.
Had pizza and presents...with bubby, daddy and aunt mary jane.
...Cute Christmas card from MJ, will frame this and put with my holiday decorations. Sawyer will need to see that Santa can be black too...
Happy 3rd birthday my dear girl. Can't believe all you've been through in your short life... we love you so. so. so. so much. Party pics coming...

Sunday, November 13, 2011

14th Birthday

Ashley drew this picture shortly before dying...entitled Ashley's Heaven. We know there are horses there.


Ashley, LuLu's liver donor, would have been 14 this last Monday. Her birthday is a tender day for us. Not a day goes by that we don't think of her, pass by her pictures through our house or send a prayer of gratitude each night for her and her family. But to wake up Monday morning knowing it was HER special day that should have been celebrated rather than mourned makes it all so real and sad.














My eyes weren't dry that day for more than a few minutes at a time as I thought of Ashley, Her DAD, Her sisters, Her Grandpa, Her cousins, aunts, uncles & friends. But most of all for her dear, sweet MOM. I put myself in her shoes, knowing it could have been me to lose my daughter and how I would be feeling every moment of every day if that were so. Life would be impossible, yet so many people carry this sorrow every single day. I love Ashley's mom so much. She is a wonderful woman, so generous and so kind- it's not surprising that Ashley was who-she-was at the ripe age of 12 when she left this world behind her.




I really do wish Ashley was blowing out 14 candles, had planned a fun party and was spoiled with gifts. Maybe a horse? Would this have been the year she'd get a horse? I couldn't help but wonder.... I'd give anything to be connected to her and her family a different way. Or simply not to know them at all if it could mean they had Ashley back.




After LuLu's preschool we went to pick up balloons. Her favorite colors, blue and purple, just like last year... 14 rather than 13. London was telling people at the party store that is was Ashley's birthday- if only they what that meant. We wanted to let them go at the donor monument down town but it turned cold and dark too soon. LuLu and Jones let them go to heaven sending each one up with kisses or words of love for Ashley. We sang Happy Birthday to her several times that day but no notes were sung as beautifully than from LuLu as she let balloons drift up to heaven.




In the morning I asked: "LuLu what did Ashley give you?" she looked down at her bare tummy and proudly said, "a scar", "no, LuLu- what's behind the scar?" "Oh, a liver!"

We love our Ashley! Happy Birthday sweet girl. Thank you for LuLu's perfect liver and happy life-no longer being lived in the hospital, in chronic sickness or in constant worry by all who love her. Bless donors and donor families everywhere.


xoxo

video link below:
http://www.youtube.com/watch?v=Gd9t1_X9Z9s&feature=share

Thursday, October 13, 2011

prima ballerina






My little Lu started dance about a month ago. We are taking with our dear little friend Olivia and it's a weekly 45 minute slice of heaven. I softly cried through her first class. It wasn't too long ago that I wondered if my sick baby would be able to dance one day. (insert picture of SICK LuLu in liver and kidney failure, or vented and tubed and IV'd to the hilltops) I count my lucky stars that her transplant did come in time. Sweet London gets a chance to do anything and everything in life.

I recently came across this blog that had so many similarities to ours it was uncanny but her little liver didn't come in time. I was hysterical in the wee hours of the night when I finished reading Ruby's story from beginning to end. I thought I was going to have a panic attack, my throat was closing up I could hardly breathe. The grief I felt for this young mom hit me to my core. I spent the rest of the night curled up with London in her crib. Holding her tight and recounting my blessings. I wondered why that wasn't us and what if it was? it could have been....

I was ashamed in those hours that I don't remember all we learned through our trials with London on an hourly or at least daily basis. I had begged James to do bedtime with the kids on this particular night because I had just had enough of them for one day. My heart ached that I didn't tuck them in, read to them, sing to them, kiss them--because I could. My sweet children are alive and well and I gave up a bedtime with them- something that Ruby's mom would die for. I cried for our Sweet donor Ashley's mom and imagined how empty her arms must feel.

So lessons relearned, seeing LuLu in the special glory that is hers rather than such a terrible two. I thank God she has such a strong spirit, it served her well through disease and sickness and I know it will continue to be such an asset for wise, beautiful, tough as nails LuLu. Love you girl.

xoxo
lizzie

Monday, September 5, 2011

Ode to Ashley

Kissing Ashley's name on the Donor Wall.



Ashley Lauren Maynard...can you find it?





LuLu met her Livers Daddy for the first time this weekend and we loved spending time with him, remembering Ashley and eating good food. London calls him LiverDaddy, so cute.





Our parents and almost all of mine and James' siblings, nieces and nephews were at the ceremony and unveiling of the wall. It was a great morning. I'd recommend going to the amazing, beautiful monument that is on the SE corner of the Salt Lake Library. It is spectacular.



Meeting LuLu. He has known her well through her blog but this was the first time they were able to meet as Will lives back east. We appreciate his love and concern for London and her health.

I'm sad I missed the opportunity of getting pictures with Ashleys Grandpa and cousins but are so glad we got to visit with them. Love you Maynard Family!!!!!!!!





Me and my miracle.

Wednesday, August 17, 2011

PUZZLE, yard sale extravaganza & application sent!!



We have seen on other adoption blogs and loved the idea of a puzzle fundraiser. If you'd like to help us with adoption expenses, you can purchase a piece of our puzzle for as little as a dollar per piece. We will write donors names on the back of the pieces to help us remember all of the support and love we had along the way, and eventually frame and hang this sweet giraffe puzzle in our baby's nursery. I've linked a donate button on our sidebars if you are interested.



check out our family blog to see our yard sale fundraiser:





Thursday, August 4, 2011

Plus 1 please

What started out as a grave diagnosis for LuLu over 2 years ago has led us down many paths filled with sorrow and turmoil as well as amazing, unique blessings.

To name only a few (of the good stuff)... our association with people we would have otherwise never known.
Our appreciation for health and the life of our children in a whole new light.
Our respect for people in the medical profession and all the loving hands at PCMC-- I have always thought doctors and nurses were great (my mom being one of them) but it is different when your child would not be alive without them.
Our gratitude to live in America where we have resources at our fingertips that others can only dream of.
We have been loved and surrounded by friends and family that have carried us through hard, hard times.
Our love for a new extended family that is our donors. And a DEEP love for our Ashley angel.

HOW??? would we grow our family in the future was burning in my mind and heart when we found out that what London had was a genetic disease passed down from both James and I. The seed was planted that evening in February 2010 I just didn't know what it would look like when it bloomed.

The chances of having another child with Alpha-1 is 1 in 4, a carrier for the disease 2 in 4. For a little while I toyed with the idea of "taking our chances" and accepting whatever God gave us. We would never take back our LuLu and the same would be said for a future child ill or not. Fast forward many months of seeing her suffer, thoughts and times of actually coming close to losing her, waiting for another child to die so that she might have a healthy liver and finally flourish... We will not be playing with those odds. I can't do it to myself, my family and especially not another baby.

We researched fertility treatments. Genetic testing. Adoption. Just being happy with our 2. Until our trip to Haiti in March we were still undecided though adoption seemed like the best decision to us. After Haiti it was all I could think about, in particular an orphaned child from there. It was a major disappointment for James and I to learn definitively that Haiti would not be an option for us because of age and marriage requirements. It felt like a deep loss as we love the children there who are so desperate for a home. We went back to trying to feel like maybe our family was complete with 2 as we didn't feel like genetic counseling was for us nor did domestic adoption feel like the right path for us.

We are still so sad that Haiti's red tape and broken system prevent adoptions from happening but are grateful for what we saw, learned and felt there and knew they weren't the only orphaned children needing a Mom and Dad...and a Jonah and a LuLu. So, thus the search continued and has led us to Ethiopia. It feels good again and right. It will be another road filled with uncertainty, ups and downs as well as great lessons that will be as rich as the ones we have experienced the last two years. God has led us in this direction and we are following a little blindly as the expense of adoption, especially internationally feels like a road block that will be impossible to get around. But, as I have heard a million times in my life- "Where there's a will, there's a way" and that shall be my mantra.
 

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