Sunday, July 18, 2010

Tid Bits and what nots

Ashley's (Lulu's donor) family came to see us today as they were in Salt Lake for a baseball tournament. It was so nice to see them and to feel their love for LuLu despite their great loss. This is a really neat family with 3 amazing kids. Its a privilage to know them.

Tappy toes on our piano

Not all childrens markers are washable. Found this out first hand. Didn't come off for days...don't think this is her color.

Love him.

Love her.

"Her" is doing very well. Her EBV levels are under control and all the other markers they look for with her labs all look great. We are proud of her and haven't had to be inpatient for a few MONTHS! She passed clinic last Monday with flying colors. She is still on the wee side when it comes to LB's, only in the 3rd percentile but we are glad she's on the charts.

She is filled with good spirits and lots of energy. She doesn't ever crawl, rarely walks, just usually sprints on her tippy toes to wherever she is headed. I love it. I love her. What a miracle I hold in my arms everyday.

Love you LuLu.




Megan said...

So happy to see an update on here... even happier to see that everything is going GREAT with LuLu!!! Hope you guys are having the best summer yet :)

Alice said...

Great update! So good to see their smiling faces.

with love,

Alice (Martim´s mum)

AshleyS said...

what a wonderful update, liz! so happy for you guys. hailey STILL prays for Lulu every single night.

TPoirot said...

Amen Lizzy...what a little miracle baby! LuLu is just thriving & I'm SO happy to hear the GREAT news- All of our love to your entire fam ;0) xoxo

Im kinda a big deal said...

Yay!! Im so happy to see her doing so well. Miss the fam tons!!


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