Saturday, July 2, 2011

make plans, cancel plans

the bow was a nice touch, lulu appreciated it....

woke up from this nap to my mom's beautiful face...she is still my comfort just like i'm lu's. i would have loved for my mom to hop in the crib with us!

it was going to be a really fun weekend. dirt biking this morning, birthday party for the kids, staying at a friends cabin tonight...throwing a surprise party for my sis-in-law tomorrow (SURPRISE SARA!).... but it's not unusual for us to avoid a crowd to keep London well or to cancel the fun stuff to get LuLu better. so instead we headed to PCMC this morning for a (short) stay...we should be able to leave Monday, knock on wood. we will make up for the lost fun next weekend. London's temperature got up to 103.5 which is an automatic hospital stay for her.

i'm not saying that watching the little mermaid on a continuous loop isn't fun....just not AS fun as plan A. it always makes me take pause to reflect on how grateful we are for modern medicine, the care we receive at Primary's, for our donor Ashley and how fortunate we are to have such a miracle child. she is an impeccable 2 year old. i hope i'm as proud of her as a teenager as i have been in her short life thus far.

her labs look good, she's receiving fluids and IV antibiotics, urine/stool samples look okay, so not sure what the cause of the fever- probably just a typical bug that kicks her cute, little immunosuppressed butt.

get well soon my little lu.


Ang said... not lulu too. Im sorry:((( we should meet for a bit or something. Darn it, get better quick cute baby!!!!

Janene said...

Hope her stay was quick and not too serious. Hope you were able to make up for the missed 4th of July celebrations. Hope we'll see your cute family at the liver picnic in Aug. Thanks for your positive and uplifting example.

Wendy @ The Shabby Nest said...

Oh. my. I read about your etsy store on Three Men and a Lady. When I read that your daughter has a "genetic liver disease" I had to click over to find out what it is. My three sons all have Alpha-1as well. Luckily, they are all relatively healthy. My heart goes out to you and your struggle with the disease. It is scary! I am so glad to find other families that struggle with Alpha-1 as well. I would love to chat with you sometime if you feel like it. My email is shabbynest (at) yahoo (dot) com.

hugs! Wendy


yasmin lawsuit