Wednesday, February 10, 2010

It's been a GOOD week

Monday's clinic appointment went very well--as good as it gets really. A tweak here and a tweak there and we were on our way. We had a chance encounter with a beautiful Mum and babe in the waiting room. I started talking to her and asking her questions about her little girl.....

....she too, has Alpha-1. The first we've ever met! It was surreal, an instant bond with Kayli and Belle. We hugged, we cried, both so excited to meet one another. They are on the yellow brick road to an eventual transplant. I felt a wee guilty sitting next to her, knowing how well LuLu is doing and understanding the fears and unanswered questions she has as a newer liver MuM. I know- I've been there-still doing that. I told her I'd be her guide... it's sad to think we could have been sitting feet away from each other and not met. Speak up everyone...we're all so connected. We just have to put the dots together.

Us with Corrine, our transplant coordinator and The Queen


Healing beautifully. It doesn't get her down. She doesn't even seem at all bothered by it. She is already quite rough and tumbley. Crawling, rolling, standing...and on the verge of walking by herself. In one week we've covered her years worth of milestones. Miracle after miracle.
I was teary standing in front of shelves and shelves of baby food at Target. I was like a kid in a candy store....filling my cart with tons of food...feeling so happy and lucky that my daughter will now eat, and very well at that. I feel lucky because most times it's a real struggle to get liver kids to eat after transplant.

Grandmum
Julianna our transplant social worker. She's been great. Always making sure WE are doing alright.


It was a beautiful, sunny day after clinic so we took advantage of the nice weather. LuLu felt leaves for the first time. She was quite inquisitive--taking it all in. Then she went all the way down our walk way with little help from MuM.

She made it across the finish line. My friend Amy across the street later told me she saw us out her window and was loving it. I was loving it too.

Getting into STUFF! YAY...that's normal! Make havoc little LuLu. I welcome you to do so.


Auntie Joser stopped by to say hi and I suckered her into helping me with a bath. She couldn't wait to get her hands on her....

Tonight. This is PERFECTION. THIS is what our life is about. The little stuff means SO much. Oh, how I love my family. I am happy.

11 comments:

Annie said...

Yay for a beautiful day and a much healthier little girl at home with her BEAUTIFUL, lovely, sweet family. This makes me so happy. Love you, sweet liver Mum. xoxo

p.s. you're so good at making those connections with people. I'm afraid I'd be that person not to say anything and miss making a monumental connection with another person. I'm learning a lot from you.

Carrie Page said...

I'm SO glad to hear of London's progress! What a blessing! I think the world of you Liz. So, So happy to hear how well things are going!

Leslie Jean said...

I'm with Annie-- you have a gift.

Hooray for LuLu.

I continue to be inspired!

Emily A. Merkley said...

Thanks for posting Pics Liz... I'm always checking back to see how the Badger family is doing and how little LuLu is healing! Love you guys!

Karen said...

......beautiful post!Thanks be to God!

Kayli Cragun said...

Hi Lizzie!!
Okay I don't even know where to start I have read your blog from beging to end and then I sat with my husband and read it again! You are absolutely amazing!! I feel like I have known you forever in just that 5 min encounter at Dr. Books and from reading your blog. It was so helpful for Brad and I to read your blog. We thought we had an idea of what we are in for but we really don't. I just sat there and sobbed hoping that I can do this and be as strong and as positive as you have been. You have and aboslutley beautiful family and I am so excited to get to know you even more and to get a few answers to my endless list of questions.
Kayli
I added a link to LuLu's blog from my blog

AshleyS said...

Beautiful!

Jo Lynn said...

Loved the last picture, loved them all, but to see those two together with their daddy reading bedtime stories is just how it should be, how beautiful is that!!!! So glad to hear she's doing so well and to see her outside enjoying the leaves..yeah for Lulu!!!!

TPoirot said...

what an inspiration you & Kayli will be to eachother! I'm glad you found eachother~ and SO proud of the MUM, wife, daughter, sister, friend, mentor, and inspiration you are to all of us~ cute pictures of LuLu (as always)happy days...

Erica said...

Hooray for good weeks. You guys deserve them. I am glad you found another liver mum and can help her along this crazy journey we're on.
Feel free to pass along our blog to her as well.
I love that Lulu is getting into mischief and eating so well! Keep it up little one.

Im kinda a big deal said...

Im so happy she is doing so well!! (: you are the most amazing family, Thanks for the updates, miss you all!

 

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