Tuesday, November 24, 2009

Patience is a Virtue

"Roxy and Lulu"

I had always considered myself a patient person.

Then I was pregnant and had to wait 9 whole months to meet him...patience Liz.
Then I had that baby and realized I had a lot to learn.
Then I was pregnant again...had to wait 9 more months to meet her....
Then I had that second baby...thought that was real hard- to have 2, learned to be more patient.

Then my baby got sick...many Doctor visits, blood draws-heart ache, wondering, more patience. Hospital stays...patience. Waiting for results...a lot of patience.

Found out I wasn't a match for donation...patience...wait for it, wait for it...

Found out yesterday- James is not a match....patience Liz.

Found out this morning my dear sister Cydnee, not a match...she is so sad too. Patience.

Think about having to wait on UNOS, don't want to go there. It would be a very long wait. I don't want to be "waiting" for a baby to die, morbid thought for a mother.

I still have hope. Lulu has an uncle that is in the screening process. He's been chomping at the bit...what amazing families we belong to.

London luckily has another aunt and uncle that have initiated the process and a few close friends that are more than willing-so we're not out of options, yet. But as you can see the "right" liver is hard to find...I will try to continue to have patience.

If you don't know exactly what your liver does for you...do me a favor and please look to the sidebar. Appreciate your liver. Appreciate everything in your body that works correctly. It is such a miracle to be healthy.


Amy Martinsen said...

Beautiful Liz, I have not seen you in years. But, When I heard about your beautiful daughter I cried! I can only imagine the pain, and frustration. I have two of my own and I thank Heavenly Father everyday for them. You are an amazing and a really strong beautiful person and MOTHER which little Lula is so blessed to have. I read your blog and saw your pictures. You have the most amazing FAMILY AND FRIENDS you could ever ask for. That is really neat that you have so much support. If there is anything I can do please let me know. I will try to make it to the fundraiser. There would nothing that would make me happier to help you and your beautiful family. I know your busy but, I would love to go to lunch one day. You, Chantell, Kathryn and I. Please let me know if there is anything I can do. My prayers are with you!! Love, Amy Martinsen Call me if you need anything 801-244-8186

Marga├ža said...

Patience is something I also had to learn with Martim´s disease, I understand your feelings. I know it´s not easy to deal with... I´m sorry you are still waiting for the perfect liver for Lulu, but once you´ll find it, you will see the diference it will make to Lulu. You will have a new Lulu!!! And that will compensate all the patience in the world.

Don´t lose your faith, someone will have the perfect match to Lulu!!!

With Love,

Alice ( Martim´s mum)

Julia said...

Kisses, sis.

Sarah said...

Patience is the hardest part about this entire process. Before and after transplant. It's been a long road for you, something I know nothing about, but it's a long road post transplant. Something I am becoming all too familiar with. My daughter was 14 months when she received a liver transplant in January of this year. Unlike LuLu, she had no underlying issues/disease that effected her liver. Her liver simply failed and the doctor's never determined why. I happened to find this site through a friend's facebook page. We did lots of fundraisers for Mackenzie so if you ever need some ideas or just want to talk / swap stories please feel free to contact us.

Ben and Natalie said...

I don't really know what to say.... I am bawling right now and I know you are such a strong person & I would hope that I would be as strong as you are in this situation. Again, I don't know what to say. You are a wonderful mother (very patient) and just an amazing person. Please let me know if there is anything that I can do. Also, I was wondering if you would send me a quick email so that I can have your email address. I know you are a busy woman/mom but my email address is: jakey0610@yahoo.com

You have wonderful people surrounding you & please know that Little LuLu is in our prayers as well as you & the rest of your family.

Rachel said...

i am so sorry liz. your stronger than many of us could ever hope to be. keep doing what youre doing and it will work out.praying for you~


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