Monday, November 2, 2009

Primary Childrens Update

London is on day 8 at PCMC. Overall, she's gaining energy and is awake quite a bit. I even got a few smiles out of her the other night. The bacterial infection was controlled enough to be able to get her picc line placed. A picc line is a catheter that runs from a vein in her arm to her heart. It is being used to help meet her nutritional needs, i.e. to gain 3 lbs. It goes straight into her blood, bypassing her digestive system that has been failing her in that department. LuLu is hooked up to so many wires and tubes right now that it's a 2-person job to move her from her crib to your lap.

Lizzie took some pictures of LuLu in her ladybug costume on Halloween. Lizzie was able to "escape" long enough to take Jonah trick-or-treating in Grandpa & Grandma Badger's neighborhood. She slept at home that night with Jones while James stayed with LuLu. Jonah has had lots of fun going to see his grandparents, cousins, and aunts & uncles during LuLu's hospital stay. However, I'm sure he'll be beyond thrilled to get his family back home with him! James is burning the candle at both ends managing his company, picking up and caring for Jonah, and getting visits in at the hospital.

As I write, Lizzie is in her CT scan as part of the living donor qualification process. It will take 1-2 weeks to get her results back. Three specialists will review it for ideal branching of arteries and bile ducts from her liver. About 30% of living donor candidates get disqualified after the CT scan. Lizzie really has her heart set on donating to LuLu, so we're hoping for a good match.

Hopefully LuLu will be in the comfort of home the next time I post here. Thank you all so much for your kind words, deeds, and heartfelt prayers. Lizzie has told me over and over how much it lifts her spirits to be loved by so many. Now, let's all pray for LuLu to fatten up! It's so important to a good post-transplant recovery.



(edited to note: LuLu was maybe coming home today. However, she just started another fever, so she needs to stay a bit longer)


Tara said...

It breaks my heart to read what little LuLu is going through. I can't imagine how difficult this is for James and Liz, Jonah and sweet little LuLu. They are so lucky to have such great support from their family. I am in awe of their strength and the love they have for their little family. Stay strong, Lizzie...Love you!

Brock and Lisa McKeown said...

Thanks for the updates... I glad to hear Lulu is doing a little better.

Cydnee said...

Lulu, wish I could donate some fat cells to you ;)!! Your Auntie Cyd love you lots!

Carli said...

I am praying for you guys. It is so hard to have a sick child and to see them suffering. Liz, please let me know if you need ANYTHING at all. I know how it is to have one baby at the hospital when your toddler needs you at home and it is heartbreaking. Seriously, if you need a meal, a babysitter or someone to talk to, don't hesitate to ask! I am right down the road!

Dave and Lacey said...

It's heartbreaking to think about the struggles you are faced with right now. We can't even imagine. Your family is in our thoughts and prayers. We sure hope LuLu makes it back home soon.

Love your cousins,
Lacey and Dave


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