....I'm not sure what will. LuLu not only got a "perfect liver" from her sweet donor, but she got an extra spark and twinkle in her eyes as well. Forever grateful to her family, for their sacrifice...to ALL donors and donor families.
I just wanted to share a smidge of a conversation I had with Dr. Book days after transplant. We were talking about what a miracle this whole process is, how full circle it had become. She knew I struggled A LOT with the thought of someone losing their child in order for me to keep mine. I told her about the peace I was able to find following surgery through a series of beautiful events. What a divine, sacred process organ donation is.
Tears came from both of us when she was telling me, in so many words, her experiences witnessing organ procurement. She said that Dr. VanderWerf handles these organs with such care, love and respect that it feels like a beautiful, sacred ceremony. She said she's never been able to observe without leaving-crying many tears. She is one of the best women.
Doctors do everything they can to save a person. When they can't and when the family chooses to give life to others admits their grief, rest assured their loved ones are treated with more dignity and respect than we could ever imagine as their organs are harvested and continue living on after their soul has gone to bigger and better things. Leave your legacy, DONATE LIFE.
xoxo
lizzie, liver mum
These wings have been hanging in London's closet for a few months. I thought they were darling when I bought them at "LuLu's Boutique" and they were only $4.95, would never have imagined the meaning they would take on mere months away from purchase. Has an Angel, Is an Angel...the later I've always known.
Another FIRST today. Shoveling Cheerios in her mouth faster than they could disintegrate. My heart sings....over CEREAL!! Her lovely headband was mailed from her friends Miss Mia (California) and her big sister, Angel Kate (Heaven). Thank you girls, she loves it.
Life is soooo good!
Daddy and LuLu's self-portrait. James is doing his very best to balance life right now. Luckily, business has stayed steady, he's doing frequent visits to the hospital and seeing Jonah most all days. There have been a few self declared take-your-son-to-work-days which are enjoyed by both parties. And of course...being an amazing husband, friend and support to me all at the same time. This MAN is remarkable.
LuLu's chest x-ray yesterday. The torture is quick, and she is strong. Turned out to look good despite some respitory struggles she has off and on. Luckily we caught NaNa, PaPa and Jones in the hallway otherwise Jonah wouldn't have been able to see her at all if we were on the ICS floor. Jones and I got to spend some quality time in the playroom as LuLu was in the company of her wonderful Badger Grandparents.
Dr. Jones
The LOVE is tangible...like you can reach out and grab it. We love you NaNa and PaPa.
"No, no Jones...leave her mask on. Don't touch her face. Germs, Germs, Germs. No, No, No. Don't do that..." Poor boy. Welcome to your new life...hard, yes. But better than the one we've left behind.
Spoiled by my friends...a bink covered in Swarkovsky crystals!!...I protested, they said she deserves it. (and promised she got it half off...) Okay, she deserves a lot. Unfortunately she is a binki snob and will only use her blue hospital soothie. One day she will put this sweet bling in her mouth. Thanks Aunt Ally
LuLu took her bottle last night and fed herself. This is a first for her and we felt like very proud parents. So proud and excited, that nurses rushed in to see what the commotion was about. Job well done LuLy, job well done!
Wrong hole London. Trial and error....
Spoiled girl. How amazing are these boots? Pretty much to die for...soon "these boots will be made for walkin, cause that is what she'll do...one of these days these boots are gunna walk all over......errr, our house where she'll live in a bubble, for a long long time!" thx again Al. Dinner was amazing Lacer. Your company was exactly what I needed in the hospital cafeteria.
Tounges-a-waggin, happy-as-can-be!
This was pre Tycho...not so happy. Thanks for the good cheer Tycho! See you again soon....
This is only one appendage, they all look this way from multiple IV's, but no one's complaining.
Broviac, same as what her Picc line did before the surgery. This is more permanent...
Where one of a few lines were placed for surgeries.
Thank you Miss Eden for the beautiful BUTTERFLY bow. I learned something new with this gift...butterflies are actually an international symbol for organ donation. How very poetic. London has been taking off the last few days with her new liver. We are finally seeing her fly.
I can hardly believe it had only been 10 days post transplant and only 5 days post closure surgery when these pictures were taken. She is getting VERY little morphine or anything for pain and is as happy as can be. Resilient little bug. 
Even a little Peek-a-Boo being played already. This is a first of many firsts London will experience in her second year of life. Can't wait for every milestone she'll hit now that she will be feeling like a new baby. Spread your wings little girl!
This was London's view on her ceiling both in the PICU and ICS. She loves her bubby.
Pilates--that would even make Jenna proud. (my dear instructor)
She looks ready for mischief already. I can't wait!! Please start crawling all over and pulling things out of drawers and making messes for Mummy and keep me on my toes. (really, please!)
Bu-Bye PICU, our stay was nice, nurses great but hope to never be critical enough to return.
The moment I have been waiting for. Beautiful, no? Warrior baby, Miracle baby.
I would have given 2 very enthusiastic thumbs up, but my other was on the camera. So use your imagination.
Ready for transport. She got many "ooos" and "ahhhs" down the hallways and was very warmly welcomed to the ICS as the "cutest baby they've ever seen". I'm sure they say that to all the little ladies, but she is pretty darn cute and has the sweetest, strongest spirit inside of her. She eminates goodness and beauty. I love her more each day, Jonah and James too. I thought I loved them as much as I possibly could, maxed out, but this has changed everything somehow. It is so different now. They all give me the chills when I see them and I cant wait to get my arms around them and lips on them. Enjoying every second with my family. 
