Thursday, January 14, 2010

1:33 PM






Thank you friends, family and strangers for the calls, texts, emails and comments this morning...they've boosted our spirits. When we arrived there was a whole team ready and waiting for her-draped, masked and ready to check her out. She has had many preliminary labs and tests done to make sure she is healthy enough to undergo surgery. So, we are waiting.... but I think very few things would allow for her Doctor to put the brakes on this. We CANT be sent home, could not deal with going through this again.

All I know about the donor is that he/she has given Lu a very good offer. I will not know age, name, gender, cause of death...anything at all about the donor until later when and if the family wants to be in contact with us. My impression is that he or she may be here @ PCMC but I'm not positive. I am wondering how many others are also benefiting this day, their prayers answered as well.

Surgery could begin anywhere from a few hours from now to several hours from now depending on the harvesting of other organs from the donor. So for now we are sitting in LuLus room while she's hooked up to different fluids to help her with imbalances she is having (sodium, sugars etc.) with both sets of Grandparents, Heather May (reporter) and Steve Griffen (photographer) and my sister Julia. We are in good company.

23 comments:

Tara said...

Liz, I'm praying for your family right now. I can not imagine what you are feeling at this moment--so many different emotions, I'm sure. You are such an incredible mommy and such an inspiration to many. I'm proud of you and love you with all of my heart. Stay strong, and please give us updates as you can.
Tara

Karen said...

Oh my gosh...have been thinking/praying for you guys all day.Thank you so much for the update.

Megan Names said...

Love you, Lizzie! Will be thinking of you guys constantly & only hoping for the very best.

Jinii said...

LuLu and your family are in our prayers. Thank you for keeping us all updated.

Heather and Kade Scott said...

Love you Liz!Thanks for the updates
:)

Emily A. Merkley said...

We are praying for you Liz!

Trent and Brooke Starr said...

Oh Lizzie, I hope everything goes perfectly! I will be praying for you and your sweet little one.

Love ya,
Brooke (Martin) Starr :)

johnsonfamily said...

Liz and James

I've been following your story for a while now and have been so impressed with the way you're handling this stressful situation with your sweet baby girl. The two of you are a class act. Thank you for sharing your story and testimony, it really helps put perspective on how valuable a little life is and how easily it can be gone(what an amazing sacrifice this donor family is making). I hope you can feel our prayers sustaining the two of you, Jonah, and little Lulu.

Love
Amy (Taylor) and Ben Johnson

Susan said...

I don't know you personally, but feel as if I do (and would certainly like to) since I have been following your blog that I heard about on Facebook. You are all such an inspiration to me and remind me to value the little things, including our good health!

My thoughts and prayers are with you and Lulu as she undergoes surgery and recovery.

The Davidson's said...

Your family and Lulu have been waiting so patiently for this day and God has finally found the perfect liver for Lulu. Dont be too upset on the logistics of how the liver came to be. That child is now in heaven and God is holding them now. For whatever reason that child needed to go and is in a better place.
PS. The photographer with you today is Tylers uncle

A and B Circus said...

Loves, hugs, and prayers from Big brother Ben and Aunt Angela. The kids send their loves and hugs as well. Please kiss Lulu for us!

We love you,
Ben and Ang and kids

andrea said...

this disease is one of the heridatory disease. this disease is transfer to children from their parents through the way of genes. this disease mailny affect the working of ling and liver.

Douglas Lai said...

Waiting is always the hardest, but seeing a bigger light at the end of the road has got to be great. Dr. Book and her team are the best.

Dayton and Candice said...

So so grateful for the update!! All of us here are sporting our "Go Lulu" t-shirts and doing some serious cheering (praying) on her part :) Love you guys

Cydnee said...

Hey Lizzie Bug, here's a little scripture (personalized for Lulu) that has made me think of London since knowing she'd be getting a transplant...from D & C 84:88
"And whoso receiveth/giveth [a liver] there I will be also, for I will go before your face. I will be on your right hand and on your left, and my Spirit shall be in your hearts, and mine angels round about you, to bear you up."

Hugs, kisses, prayers!

Love,

(Aunt) Cyd

paula said...

James and Liz, We are so happy for you that the call FINALLY came! We as a family having been praying for little Lulu and your family everyday in our family prayers. Know that we are thinking about you and praying for all of you, the donor family and Lulu's doctors, that all will go well and she will go on to live a healthy and happy life! Let us know if there is anything we can do for you. Chelsie would love to babysit Jonah anytime! Take care, we love you guys! Love, Ward, Paula and family.

Jamie said...

I love Lulu and her boxes of tissues. Makes me smile.

So happy to see an update. I haven't been able to stop thinking/wondering about what was going on today - and offering constant prayers.

Give Lulu lots of love from the Neiders. We love you guys.

TPoirot said...

thank you for update! so glad to hear your have a strong support system around you! "Go Lu Lu"xxxx

Colby Kids said...

Prayers for a smooth surgery and a speedy recovery. More prayers for the donor family. Fly high, angel donor.

Sarah said...

extra hard prayers today... for all.
love you!

Jo Lynn said...

I hope you get to meet this incredible family and embrace them, if it were me how could I not meet the families that my baby saved? She's such a doll, I LOVE the picture of her asleep in your arms and I'm glad all is well and my prayers are with you as she goes through this surgery. What a fighter you have! We love you guys and I'm glad Julia is there, what an incredible woman she is! Thank you for updating us on her progress.

Brett, Jenny, and Taylor... said...

You are in our thoughts and prayers! What an amazing famiy you have. And what an incredible gift you are recieving from a wonderful famiy as well. I hope you get to meet them someday!

shashank said...

Here is a link to more information about the genetics ofAlpha 1 Antitrypsin Deficiency that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Alpha_1_Antitrypsin_Deficiency/26. I hope it helps.  AccessDNA

 

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